See a Bully. Stop a Bully. Make a Difference!

November 30, 2016 / Jessica Buell

By now, you have either heard about or read both the Breastfeeding Today Blog Post and the protest letter that was published nearly immediately after its release.

The blog post can be found at www.Breastfeedingtoday-llli.org/tongue-tie-lip-tie-diagnosis-treatment-aftercare/ and the letter could previously be found at www.facebook.com/groups/lactnet/ (23rd Nov.) and www.facebook.com/kellymomdotcom/?fref=ts (23rd Nov.) However, I can no longer find the letter on either site.

The protest letter is another example (out of many) of the bullying that accompanies any attempted rational discussion regarding tongue-tie and other oral restrictions, and their proper assessment and treatment. The signers take exception to it because the blog does not conform to their particular rhetoric. Some of the signers you will recognize as people who have a low tolerance for anyone who disagrees with them. The others have surprisingly chosen strange bedfellows!

I think if one is going to criticize someone else in scientific circles, they ought to have solid methodological and research ground on which to stand. In this case, the ground on which these signers stand cannot support their collective ego weight.

For those of you who doubt that I have done my research, and for those of you who simply want more background information for the blog post and my other writings, please find my list of references below.

Before you go, let me just share a few stories that prompted the writing of the blog post:

Hundreds of babies have undergone both lingual and maxillary frenectomy to resolve breastfeeding problems only to experience no resolution. The stories of these babies are the garden variety stories. The stories I tell here are not so garden variety. I daily receive emails from scared, disillusioned and angry parents.

A woman brought her baby into our free bodywork clinic and told us her baby had been refusing the breast for weeks. She had heard that craniosacral therapy would finally resolve her breastfeeding problems. She wanted us to check her baby to see if his frenulum had “regrown.” I checked his tongue underside and examined him for tongue function: he had massive scarring attaching his tongue to the floor of his mouth and significantly compromised tongue function. I asked her what had happened. Her baby had received not one, but four lingual frenectomies and one labial frenectomy! Each frenectomy was followed by excessive new scarring. Had she been doing the aftercare protocol? You bet she had!

She reported he screamed each time she did the “exercises,” especially when she rubbed the wound the way the dentist showed her to. With every new frenectomy, he became more and more orally defensive until he just stopped going to breast…

She showed me the before pictures and video. He had a normal maxillary frenum before revision with perfect range of motion. His tongue was retracted making his lingual frenum appear tight. What was his real problem? He had a severe torticollis that no one ever assessed let alone addressed.

What did we do? We did craniosacral therapy, chiropractic, OT, and some PT. The baby eventually latched on again but his willingness was still reserved. Did we treat the scar tissue? Yes, with a scissors frenotomy; No diamond-shaped wound; No aftercare stretches; No new scar tissue and we were able to normalize his suck.

In an Eastern state, a mom took her baby for both maxillary and lingual revision. The baby aspirated her blood and ended up in a medically induced coma. When she posted on Facebook for support, her posts were removed and she was accused of fraud.

In a Western state, a mother took her baby to see a local lactation consultant who took a quick look at her baby and told her the baby had both a tongue-tie and a maxillary lip “tie.” No history was taken, no care plan other than frenectomy by laser was recommended. When the IBCLC found out the mom took the baby for a second opinion, she called the mom and browbeat her for not getting the frenectomies done, as she had told her to do.

A baby in Canada received 6 frenectomies with no change in his suck-swallow-breathe coordination.

A mom in my practice brought her baby in for assessment and treatment. Her baby was popping on and off the breast and not gaining sufficiently. The baby had an obvious anterior-tie and what the dentist classified as a class 4 maxillary tie. The baby underwent laser revision for both tongue and lip. The mom brought the baby in for her second visit with me directly after the revisions. The baby’s upper lip was so swollen she could not close her lips. She certainly couldn’t breastfeed. We tried everything to get the baby as comfortable as possible and keep her fed. We ended up dropping expressed breastmilk into the baby’s mouth one drop at a time. It took more than an hour to get the baby to calm down. The mom continued the dropper feeds for 36 hours!

Why did the lip swell so badly? The dentist accidentally lasered the lip muscle. This was the last baby I sent for maxillary lip revision.

The stories I have in my archives exceed the number of signers on this ridiculous protest letter. The stories many of my colleagues have to tell do as well. To the signers I say: Pull your heads out of your collective arse: there’s harm being done!

Stay tuned for my upcoming blogs on maxillary lip “tie,” wound healing and torticollis! Until then, keep protecting our babies!

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Infant Trauma

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LASER

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Maxillary Frenum and Lip tie

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Torticollis, Plagiocephaly and Brachycephaly

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Wound Healing

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